While being a caregiver can be a very fulfilling and rewarding role, it can also be stressful, frustrating, and emotional. In honor of National Alzheimer’s Month and National Caregiver Month, here are some helpful tips for caregivers of the Alzheimer’s population and advice to decrease caregiver burnout.
Do’s and Don’ts as an Alzheimer’s Caregiver
- Do find ways to say the same thing and use repetition when necessary. Don’t use sarcasm, slang, irony, unfamiliar words, or ask “don’t you remember?”
- Do use short, simple, slow, and clear communication with closed-ended questions. Don’t speak in paragraphs, use lots of pronouns, or use baby talk.
- Do plan visitors when your loved one can best handle them and offer tips ahead of time. Don’t talk about your loved one like they are not there with others.
- Do deal with problem behaviors by helping to manage stress and sticking to a simple routine. Don’t overwhelm your loved one with constant stimulation or excessive activity.
Signs and Symptoms of Caregiver Burnout
- Significant decrease in energy.
- Feelings of hopelessness and helplessness.
- Sleep and breaks don’t relieve exhaustion.
- Increased frequency of getting sick.
- Neglect of personal needs, leisure activities, or other responsibilities that are not caregiving.
- Increase in alcohol and/or tobacco consumption.
Ways to Prevent Caregiver Burnout
- Join a Support Group. There are various online and local support groups for caregivers, including groups specifically for caregivers of those with Alzheimer’s disease.
- Ask for help and support. Caregiving is not always a sole effort and receiving assistance is not defeat so accept help when it is offered. See if friends and family can bring a hot meal or watch your loved one so you can run errands or take a break. If you have limited support and depending on the level of assistance needed, look into professional care to provide in-home services or daycare centers and nursing homes.
- Schedule breaks. If you’re able to leave the house, schedule small pampering tasks like taking a long bath, getting a pedicure, taking the dog for a walk, or reading a book. If it is difficult for you to leave the house, maintain your relationships by inviting friends and family to visit with you over a hot beverage or a meal.
- Remember the importance of self-appreciation. Loved ones with Alzheimer’s disease may not always give you the appreciation you deserve. Remind yourself of the good you are doing by making a list, reaching out to a friend, or imagining what your loved one would say if they were healthy and able.
— Kat Binninger, MOT, OTR/L, CHT, is a student in the post-professional Doctor of Occupational Therapy program at Rocky Mountain University of Health Professions
